Talk Lipoedema

About Us

Mr Alex Munnoch

Patron
Alex is a leading international expert on the cancer-related condition Lymphoedema, and more recently Lipoedema. He is a consultant plastic surgeon at Ninewells Hospital in Dundee.

Isobel MacEwan

Chair
Isobel was one of the founders of Talk Lipoedema. She was diagnosed with Lipoedema at the age of 51, having inherited it from her mother and paternal grandfather. She lives in the countryside outside Edinburgh in Scotland and is passionate about raising awareness of Lipoedema. She never wants another woman to live as long as she did without a diagnosis.

Karen Windsor

Trustee
Karen was diagnosed with lipoedema in 2015 after having first been diagnosed with lymphoedema in 2005, unfortunately, the lymphoedema was masking a much bigger problem of Lipoedema and Hypermobility. I am a trained Reflexologist and lymphatic therapist. I keep the charity abreast of changes within the worldwide community and around cures and treatments.

Emily Jones

Peer Support Co-ordinator

Emily is responsible for project management. She has friends and family with lipoedema and has seen first-hand the positive impact an organisation such as ours can have on individuals. With a passion for bringing people together, and creating a sense of community, Emily hopes to make a difference for people with lipoedema.

Jenny Bruce

Secretary-
Jenny has a strong background in Social Media, events management and publishing. She is currently responsible for overseeing the Administration of the charity.

Join Our Cause: Become a Trustee for Talk Lipoedema ! 🌟

We are looking for new trustees to help us grow the organisation further.

Dated 01.07.2024

Why We Need You: As a trustee, you will play a crucial role in shaping the future of Talk Lipoedema. Your expertise, passion, and commitment will contribute to our vision: ensuring that everyone with lipoedema receives an accurate diagnosis and access to comprehensive services and support. By joining our team, you’ll make a meaningful impact on the lives of those affected by this condition.

Consideration will be given to candidates who have experience within the following skill areas:

  • A Medical or Allied Professions background
  • Campaigning on health issues
  • Grant and Funding sourcing
  • Marketing, PR
  • Social Media Management

We would particularly welcome candidates from under-represented groups including women, people from ethnic minority backgrounds, disabled people and young people. Strong empathy with the experiences of people affected by challenging health conditions is an essential requirement. Previous trustee experience is desirable but not essential.

Opportunities for training and development and to work in an organisation which is made up of extraordinary people who are passionate, innovative, flexible, dedicated, professional and fun.

Time Commitment: Approximately 4-6 hours per month, including trustee meetings (held virtually) and occasional events.

Talk Lipoedema supports virtual working. There is no remuneration; however, all necessary travel and out-of-pocket expenses will be reimbursed.

How to Apply: If you’re ready to make a difference, please send a brief expression of interest and CV to our Chair of Trustees, Isobel MacEwan, at isobelmacewan@talklipoedema.org

Join us in our mission to transform lives and raise awareness about lipoedema. Together, we can make a lasting impact! 🌸